Sarcoidosis

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theloverofTMI's avatar
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So I'm doing this for a couple reasons. One of the reasons is for myself because I find I don't really talk to much about it, maybe it's because I'm trying not to face the reality of the situation or just because thinking about it makes me a little down so I try not to. By doing that though..ignoring it, it's sort of like, I'm shoving it down and ignoring my emotions and the bad things in my life because I'm afraid that to face them would mean to face a lot of other emotions that I may not even realize I have. another reason is because I want to bring awareness to a problem that not many people know of because it's rare. In saying that though that doesn't mean it's good. So basically my mums ill. She has an illness called Sarcoidosis. It's basically where the immune system attacks the good cells in your body. Now it can be found in many places of the body and is not treatable, instead only manageable. It can be found in any parts of the body, In my mums extreme case, mainly her lungs, legs, spine and eyes. Basically because the illness mimics the symptoms of cancer, similar treatments will need to be undergone in order to keep the symptoms at bay. In my mothers case she may be put on an oxygen tank, possibly chemo or the same medication that my pa (who had Multiple Myeloma) had to go on. The Dr said he much rather my mother have cancer because it's easier to treat. with this there is literally only one research center in America alone and zero Sarcoidosis Drs. In short this is what it's like:
Dr: So the good news is that you don't have cancer.
Patient: Yay!
Dr: The bad news is that you have Sarcoidosis. That means you will be on chemo for the rest of your life.
Patient: Oh. 
From the group m mother joined, already two have died both around her age as well. This is a deadly disease and I wanna bring awareness to this because nobody seems to know about it or how dangerous it is.  There as absolutely no cure to this and no causes have been found yet because there hasn't been enough research done. 

There are a lot more to my life that is not good at this point in time but that is by far the worst.

Can you please please please spread this facebook page around to join as to bring awareness to the situation. It would mean alot to myself and my mother. Thank you for reading xx

www.facebook.com/pages/Sarcoid…
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graegirl's avatar
I have heard of Sarcoidosis, but only because my goal is to become a doctor/researcher. I'm very sorry to hear about your mom; it's very hard to have a loved one with such a debilitating illness. I can't imagine what it must be like for her. I wish you lots of love. It is always good to spread awareness for rare diseases such as this! Please continue to do so. I'll share the Facebook page.