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So I'm doing this for a couple reasons. One of the reasons is for myself because I find I don't really talk to much about it, maybe it's because I'm trying not to face the reality of the situation or just because thinking about it makes me a little down so I try not to. By doing that though..ignoring it, it's sort of like, I'm shoving it down and ignoring my emotions and the bad things in my life because I'm afraid that to face them would mean to face a lot of other emotions that I may not even realize I have. another reason is because I want to bring awareness to a problem that not many people know of because it's rare. In saying that though that doesn't mean it's good. So basically my mums ill. She has an illness called Sarcoidosis. It's basically where the immune system attacks the good cells in your body. Now it can be found in many places of the body and is not treatable, instead only manageable. It can be found in any parts of the body, In my mums extreme case, mainly her lungs, legs, spine and eyes. Basically because the illness mimics the symptoms of cancer, similar treatments will need to be undergone in order to keep the symptoms at bay. In my mothers case she may be put on an oxygen tank, possibly chemo or the same medication that my pa (who had Multiple Myeloma) had to go on. The Dr said he much rather my mother have cancer because it's easier to treat. with this there is literally only one research center in America alone and zero Sarcoidosis Drs. In short this is what it's like:
Dr: So the good news is that you don't have cancer.
Patient: Yay!
Dr: The bad news is that you have Sarcoidosis. That means you will be on chemo for the rest of your life.
Patient: Oh.
From the group m mother joined, already two have died both around her age as well. This is a deadly disease and I wanna bring awareness to this because nobody seems to know about it or how dangerous it is. There as absolutely no cure to this and no causes have been found yet because there hasn't been enough research done.
There are a lot more to my life that is not good at this point in time but that is by far the worst.
Can you please please please spread this facebook page around to join as to bring awareness to the situation. It would mean alot to myself and my mother. Thank you for reading xx
www.facebook.com/pages/Sarcoid…
Dr: So the good news is that you don't have cancer.
Patient: Yay!
Dr: The bad news is that you have Sarcoidosis. That means you will be on chemo for the rest of your life.
Patient: Oh.
From the group m mother joined, already two have died both around her age as well. This is a deadly disease and I wanna bring awareness to this because nobody seems to know about it or how dangerous it is. There as absolutely no cure to this and no causes have been found yet because there hasn't been enough research done.
There are a lot more to my life that is not good at this point in time but that is by far the worst.
Can you please please please spread this facebook page around to join as to bring awareness to the situation. It would mean alot to myself and my mother. Thank you for reading xx
www.facebook.com/pages/Sarcoid…
UPAADTES.. I get to look back on and cringe
apparently I like to write journal entries online that literally any body can look at even though they're more for me to look back on and cringe at. I don't really know what to say? I was reading through some of my old entries and I'm amazed at that Mariah...but I really like this one so I'm going to talk about her. I'm engaged to G, same guy I've been dating since the end of 2017. We have a beautiful 7 month old together and have moved into a very average house, but its our first so I'm greatful to have a roof over our heads. I spent so long trying to figure out my career path, putting all this unnecessary pressure on myself. I really didn't need to. I still have goals and aspirations, but now I can expect that maybe I'm getting it wrong and things will come my way when they're meant to. like my son. these days I spend my time being a mother and when I my time grants it, working on my mural business. If it doesn't pan out, I'm okay to go back to work barista, maybe even open
How you Dooinnnngg??
Here's to another update because I just don't use deviant art that much anymore. I'm pretty sure only one person actually reads these but I enjoy doing them so I'm gonna keep doing them.
So I think the last time I posted one of these was over a year ago? Well then, there's a lot I have to say.
So where should I start? Uni? My Job? My Boyfriend? My Family? I might do this in a question and short (extended) answer form to make this easier to read.
Hows uni life going?
It isn't. I deferred and just never went back.
How's that job of yours going?
Did I ever mention that I work at a cafe as a barista All-Rounder? Well now I'm sort of a supe
Rambles
This is gonna be a bit of a ramble since I haven't given many updates on how I'm going or where I'm at in life currently so here goes..
I deferred my uni halfway through last trimester meaning (for those who don't understand) I took a break from uni to resume the following trimester. After I moved so far away from my current campus I found it difficult to keep up with my classes and studies, alongside working both morning shifts and overnights. I also had a lot going on with my personal life that I found added to my stresses so the decision to defer my course became and easy one to make. During this time I found a new job at a cafe near my h
Career Revelation
I've had a revelation. Its taken a bit of thinking and reasoning in my mind but it all makes to me sense now. for a while now I've been discontent in uni. I mean I enjoy learning and I love taking in new information but I felt like I was wasting my time, like there was no point being there. At least in year 12 I had a goal, an outcome. I was doing it to get into uni. But once I got to uni I thought to myself, what was the point of doing all these essays, oral presentations and excessive travel if I wasn't getting what I really wanted out of it? I figured yeah maybe I'd become a teacher. I mean I enjoy working with people and its one of the mo
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I have heard of Sarcoidosis, but only because my goal is to become a doctor/researcher. I'm very sorry to hear about your mom; it's very hard to have a loved one with such a debilitating illness. I can't imagine what it must be like for her. I wish you lots of love. It is always good to spread awareness for rare diseases such as this! Please continue to do so. I'll share the Facebook page.